12 Intellectual disability12.3 Aetiology

12.3.3 Psychosocial development and secondary handicap

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Written by Resident Doctor Committee · Published

New in the 2027 syllabus

The College added this topic for exams from January 2027.

Development happens within relationships

A person's intellectual and emotional development comes from several things acting together. These are their biological vulnerability, their relationships, their chances to learn and the wider social environment.

Cognitive test scores do not tell the whole story. They do not measure a person's emotional experience, their attachment needs or how well they can benefit from supportive relationships.

Communication support lets people express distress, make choices and practise skills. Without it, these abilities may stay hidden from the people around them.

Psychosocial influence

Possible effect on development

Severe early deprivation

Problems with cognition, attention and social relationships

Repeated failure or exclusion

Less confidence and avoidance of new learning

Overprotection and restricted choice

Fewer chances to become independent

Bullying, abuse or exploitation

Fear, shame, withdrawal or disturbed behaviour

Stable relationships and accessible education

Support for learning, managing emotions and taking part

What deprivation studies show

The English and Romanian Adoptees study looked at children who had experienced prolonged, severe deprivation in institutions. It found lasting difficulties with attention and social relationships. Outcomes still varied widely between individuals.

Cognitive recovery could happen even when emotional or social difficulties continued. So development should not be reduced to one overall score.

Keep the study's limits in mind:

  • It does not show that all intellectual disability comes from deprivation.

  • It does not mean you can predict a person's future from how long they were deprived.

Secondary handicap

Secondary handicap is an older, historical term. It describes extra restriction in functioning, beyond the original impairment, that is linked to the person's psychological responses and social experiences.

Sinason's psychodynamic account explains how this can happen. The person's difficulties become amplified as a defence. This is a response to painful awareness of their disability, to how other people react to them, or to trauma.

Use this account as a way of formulating a case. It is not:

  • a diagnostic category

  • proof that the disability is voluntary or fabricated

  • proof that the disability was caused by parenting.

In clinical practice, try to separate the underlying impairment from things that may be changeable. These include emotional distress, limited opportunity and barriers in the environment. Remember that all of these interact with each other.

Applying the concept in practice

  • Assessment. Ask what the person can do with suitable support and what has changed. Check whether pain, sensory loss, depression or trauma explains the drop in functioning.

  • Shared formulation. Include the person's own experience and what caregivers have noticed. Do not treat every difficulty as an inevitable effect of the intellectual disability.

  • Intervention. This may combine adapted psychological treatment, communication support, meaningful activity and changes to environments that are restrictive or poorly matched to the person.

  • Review. Measure participation, confidence, relationships and practical skills as well as symptoms. Use goals that matter to the person.

12.3.3 Psychosocial development and secondary handicap | MRCPsychiatrist